HI! I'M KAREN...
Welcome! The blog title probably gave it away but just in case...
A Parent's Story: Global Developmental Delay
The blog follows me and my daughter Katelyn. I'll be sharing my experiences of parenting a child with special educational needs. Katelyn is 10 years old and has a condition called Global Developmental Delay (GDD).
Let me get you up to speed. Here are 10 facts about GDD:-
Katelyn is an only child and I co-parent with her dad. She is a very happy, loving child and always has a smile on her face. She has a great sense of humour and really enjoys life. Gosh, it sounds a personal ad but that's really how I'd best describe her.
The most valuable lessons I've learnt so far in managing Katelyn's condition are to be organised as she's very routine driven, plan ahead to avoid any upset, be calm and patient. Be proactive not reactive!
- Global Developmental Delay is a term used to describe a condition that occurs during the developmental period of a child between birth and 18 years.
- A child may be described as having GDD if they are slow to reach two or more milestones in all areas of development.
- Symptoms can become noticeable at any time from birth but can be much later depending on the symptoms and severity of the condition.
- Symptoms can be difficulty feeding, low muscle tone, fine/gross motor difficulties, delayed cognitive skills, speech difficulties, learning difficulties, communication difficulties, poor social and emotional skills, using aggressive behaviour as a coping skill.
- GDD is usually diagnosed by a paediatrician who will carry out a specialist assessment. This will often be preluded by a number of regular assessments by a GP, Child Psychologist, Occupational Therapist or Speech & Language Therapist to check development milestones and levels of abilities.
- The causes range from abnormalities with chromosomes or genes. Problems with the structure or development of the brain or spinal cord. Premature birth or childhood infections.
- Often the cause is never identified.
- Treatment may include seeing a Speech & Language Therapist, Occupational Therapist, Physiotherapist, Educational Psychologist or Clinical Psychologist.
- There is no single treatment for GDD
- It affects around 1-3% of the population
So that's the factual side of things over with. I must say it sounds pretty intense when you read it in one sitting but it's really not all doom and gloom.
Katelyn is an only child and I co-parent with her dad. She is a very happy, loving child and always has a smile on her face. She has a great sense of humour and really enjoys life. Gosh, it sounds a personal ad but that's really how I'd best describe her.
The most valuable lessons I've learnt so far in managing Katelyn's condition are to be organised as she's very routine driven, plan ahead to avoid any upset, be calm and patient. Be proactive not reactive!
You have most likely found your way onto here because you are going through a similar experience with your child. Please share your stories with me by commenting on my posts or if you have any questions you can send me a direct message. I wish you all the best on your journey.
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